A new school year is about to begin here, so I am in full advocacy mode again! Here's a follow up to the peanut issues from spring:
Dear Superintendent Brown,
In the spring, Mr. E forwarded a message we sent regarding
an incident with a peanut butter sandwich on the bus. I’m sorry I didn’t have a
chance to follow up then (I spent several weeks of the summer in China and
Japan and got a bit behind on my “to do” list), but I am writing now as we are
set to begin a new school year.
Our daughter Pink has a life-threatening peanut allergy,
which we have managed by teaching her self-advocacy and how to interact safely
with her peers when food is involved. She is aware of her allergies and
proactive in protecting herself.
What we can’t control, unfortunately, is the behavior of
other students. The incident on the bus on at the end of the spring semester
highlights for us just how unsafe the world beyond the walls of our house and
of her peanut-free classroom can be. As
if to punctuate this for us, the day after the incident on the bus, when the
topic of peanut allergies came up at a club meeting, one of our older son’s
classmates laughingly told me how “a bunch of kids at our school rub peanut
butter in the faces of the kids with peanut allergies.”
I know it will sound like an exaggeration, but when Pink faces a child who has peanuts or peanut butter, it’s akin to her encountering
someone who is wielding a knife. The risks of injury and/or death are no
different between the two. As her parents, we understand that our goal is to
teach her to be safe and to live her life without fear (to the greatest extent
possible), but we also believe it is extremely important to educate others
about the real risks of severe nut allergies. Children of all ages need to
understand just how dangerous something seemingly innocuous like peanut butter can
be for their friends.
We understand that this is an "allergen aware" district.
We also understand the logistical challenges to becoming a peanut-free district.
Our hope is that serious discussion would happen around the pros and cons of
going peanut-free, particularly with thoughts about free and appropriate public
education in mind. If the district won’t or can’t go peanut- free, we hope
there will be sincere discussion (and hopefully then action) in the area of
student education and awareness. We ask that concentrated effort be paid toward
educating students in all buildings about the risks of allergies and the
importance of promoting safety and respect. We also ask that that school-provided
lunches and snacks be free of peanuts. In particular, we ask that lunches
provided for field trips NOT be peanut butter sandwiches. Pink describes field
trips as being extremely scary and her teachers these past two years agree that
the entire experience is nerve-wracking for them as well. Because Pink's peanut allergy seems to have worsened, her allergist is suggesting that perhaps
she should no longer attend the school field trips. With plenty of alternative
sandwich options (sunbutter, wowbutter, ham, cheese, jelly, and, in the case there are
no children with severe tree nut allergies, also almond butter and
cashew butter), we sincerely hope the district is able to move toward a
different alternative for the sack lunches provided on field trips, so that we
won’t have to decide between keeping Pink safe and sending her to school so she can enjoy the same
learning experiences as her classmates.
Though Pink's allergies don’t impact her ability to make
friends and perform well academically, they do cause her to experience fear and
alienation when at school. We will continue to teach her to self-advocate, but
we ask for your help in educating other students and in making the school
environment one that feels like a safe and welcoming space for all students.
Sincerely,
Moe and Ren
1 comment:
It seems you are the vanguard, and that must be tough. Hang in there, though, as eventually you (and other parents in the same boat) will win the battle.
I am from Ontario, Canada, where the schools no longer allow kids to bring peanut butter sandwiches to school (and probably other peanut products). If a child is found to have brought a peanut butter sandwich, the parent is called in to bring an alternative lunch for the child. Also, I currently live in Scotland where there is a similar policy. This makes me believe that the policy makers in your State will eventually come around. I'm keeping my fingers crossed for you.
You may be interested in this article, citing an Ontario/Canada perspective: http://blog.onespotallergy.com/2011/03/the-best-school-policy-for-allergy-and-anaphylaxis-management/.
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